Free Epilepsy Detection and Treatment Camp , Nashik

Dear Sir,

Epilepsy Foundation in Association with National Rural Health Mission (NRHM) conducts regular Monthly Camp in Maharashtra for detection and treatment of epilepsy. The First Camp was held on 08/04/2012 at Jawahar (Thane) & 2^nd Camp at Ratnagiri on 27/05/2012 & 3^rd Camp at Satara on 24/06/2012 we saw 553 Patients suffering from epilepsy of which 130 underwent EEG testing. 222 pts were treated by the Psychologist, Physiotherapist, Occupation Therapy & Speech Therapy during the camp, 43 pts underwent CT Scan of Brain.

The Camp is highlighted by Free EEG, Free Medication for 3 Months to all patients, Free CT Brain / MRI for needed patients, besides medical checkup, Physiotherapy, Occupation Therapy & Speech Therapy. Metropolis Lab is doing free antiepileptic drug level for all needed Patient for the first time.

This Month Camp will be on 22^nd July, 2012 at Civil Hospital, Nasik.

The Following Doctors & Team of Epilepsy Foundation will be present on 22^nd July 2012, for the Camp at Civil Hospital, Nasik (09.00am to 6.00pm).

·        Dr. Nirmal Surya (Founder Trustee & Chairman, Epilepsy Foundation)

·        Dr. Nirav Mehta (Secretary, Epilepsy Foundation)        

·        Dr. Santosh Kondekar (Pediatrician, Mumbai)

·        Dr. Alpana Somale (Pediatrician, Mumbai)

·        Dr. Manoj Gulhane (Neurologist, Nasik)

·        Dr. Sanjay Varade (Neurologist, Nasik)

·        Dr. Rahul Baviskar (Neurologist, Nasik)

·        Dr. Anand Diwan (Neurologist, Nasik)

·        Dr. Pranav Shinde (Neurologist, Nasik)

·        Dr. Amit Yeole (Neurologist, Nasik)

·        Dr. Dhananjay Duberkar (Neurologist, Nasik)

·        Dr. Suhan Patil (Neurologist, Nasik)

·        Dr. Shripal Shah (Neurologist, Nasik)

·        Ms. Aarti Sharma (Clinical Psychologist, Mumbai)

·        Dr. Ajit Harale (MPT, Physiotherapist, Mumbai) 

·        Dr. Sharon Bangera  (Physiotherapist, Mumbai)

·        Dr. Aishwarya Swaminathan (Occupational Therapist, Mumbai)

·        Dr. Jagdish Rathod (Occupational Therapist, Mumbai)

·        Dr. Jyostna Nadkarni (Speech Therapy, Mumbai)

·        Dr. Zainab Nagree (Speech Therapy, Mumbai)

EEG Technician

·        Mr. Rahul Ambadskar           Mr. Santosh Jagtap                  

·        Mr. J. P. Tulsankar               Mr. Suryakant Kadam                         

Social Worker                                 

·        Shri. Kailash Agarwal (Trustee, Epilepsy Foundation)

·        Shri. Padmakar Naik (Member, Epilepsy Foundation)

·        Dr. Ratna Naik (Social Scientist)

·        Smt. Madhura Phatak (Social Worker)

Team of Street Play

·        Mr. Kishore Dhadam           Mr. Sagar Jadhav

·        Mr. Sameer Ghag              Mr. Shivaji Tambe

·        Ms. Supriya Lavate

Looking forward to see you all at Civil Hospital, Nasik.

Free Epilepsy Detection and Treatment Camp, 24.6.12, Civil Hospital, Satara

Epilepsy Foundation in Association with National Rural Health Mission (NRHM) conducts regular Monthly Camp in Maharashtra for detection and treatment of epilepsy. The First Camp was held on 08/04/2012 at Jawahar (Thane) & 2^nd Camp at Ratnagiri on 27/05/2012 & we saw 367 Patients suffering from epilepsy of which 100 underwent EEG testing. 185 pts were counseling by the Psychologist, Physiotherapist, Occupation Therapy & Speech Therapy during the camp. We also did more than 25 pts underwent CT Scan.

This Month Camp will be on 24^th June, 2012 at Civil Hospital, Satara.

The Following Doctors & Team of Epilepsy Foundation will be present on 24^th June 2012, for the Camp at Civil Hospital, Satara (09.00am to 6.00pm).

·        Dr. Nirmal Surya (Founder Trustee & Chairman, Epilepsy Foundation)

·        Dr. Ganesh Kini (Neurologist, Mumbai)

·        Dr. Shobha Kini (MD, Mumbai)

·        Dr. Suresh Sankhla (Neurosurgeon, Mumbai)

·        Dr. Charu Sankhla (Neurologist, Mumbai)           

·        Dr. Santosh Kondekar (Pediatrician, Mumbai)

·        Dr. Alpana Somale (Pediatrician, Mumbai)                  

·        Dr. Pradeep Divate (Neurologist, Pune)

·        Dr. Shripad Pujari (Neurologist, Pune)

·        Dr. Hemant Sant (Neurologist, Pune)

·        Dr. Satish Nirhale (Neurologist, Pune)

·        Dr. Sudhir Kothari (Neurologist, Pune)

·        Dr. Nandan Yardi (Ped. Neurologist, Pune)

·        Dr. Ruta Yardi (MBBS, Pune)

·        Dr. Nishita Singh (MBBS, Mumbai)       

·        Ms. Aarti Sharma (Clinical Psychologist, Mumbai)

·        Dr. Ajit Harale (MPT, Physiotherapist, Mumbai) 

·        Dr. Sharon Bangera  (Physiotherapist, Mumbai)

·        Dr. Aishwarya Swaminathan (Occupational Therapist, Mumbai)

·        Dr. Chaitrali Kulkarni (Occupational Therapist, Mumbai)

EEG Technician

·        Mr. Rahul Ambadskar           Mr. Santosh Jagtap                  

·        Mr. J. P. Tulsankar               Mr. Suryakant Kadam                         

Social Worker         

·        Shri. Padmakar Naik (Member, Epilepsy Foundation)

Team of Street Play

·        Mr. Pritesh Manjalkar         Mr. Milind Khanvilkar

·        Mr. Shailesh Nedge            Mr. Vaibhav Gidaye

·        Mr. Mukesh Jadhav            Ms. Poonam Pawar

Looking forward to see you all at Civil Hospital, Satara.

We will be carrying 130 patients 3 month medicine

Free Epilepsy Detection & Treatment Camp-2

    

Venue - Civil Hospital, Ratnagiri, Maharashtra

Date   - 27^th May, 2012

The Free Epilepsy detection & treatment camp was organized by Epilepsy Foundation of India in association with the National Rural Health Mission (NRHM).

The camp was inaugurated at 10.00am with an orientation lecture by Dr. Nirmal Surya (Founder Trustee & Chairman, Epilepsy Foundation)       

The entire team of Neurologists was brought in from Mumbai.

A total number of 225 Patients suffering from Epilepsy were seen by the neurologist, the  

Patients have come for all over the city & villages around as far as 150km to 200km.

Many students from different schools around Ratnagiri & the neighboring areas accompanied by their teachers & caregivers who were suffering from Epilepsy, came for proper diagnosis, treatment & guidance.

 

Every Patient’s data was recorded for future reference. An EEG room was set up with 3 EEG Machines & total 62 Patient’s done by 4 Technician. CT Scan department was kept open at civil hospital & total of 18 CT scan head were done.

A Team of 2 clinical Psychologist & 2 Physiotherapist, 2 Speech Therapist & 2 Occupation Therapist from Mumbai were also present to evaluate & educate the Patients & their relatives about the disease and its management. Total 105 Patients were treated by them.

Three months free epilepsy medicine were given to all patients, 130 patients were given by epilepsy foundation through various Pharma Company and rest by Govt. of Maharashtra through NRHM

There was a street play organized by the Epilepsy foundation under the supervision of Dr.Nirmal Surya for the awareness of Epilepsy which helped to give a clear view to the Patients & their caregivers about the myths & facts surrounding Epilepsy. The street play was done  in the civil hospital, Ratnagiri & the near by Railway station, ST Stand &  2 more places.

The Camp ended at 6.00pm & the team departed back to Mumbai.               

Team of Doctors

·         Dr. Nirmal Surya                     (Founder Trustee & Chairman, Epilepsy Foundation)

·         Dr. Jimmy Lalkaka                  (Neurologist, Mumbai)

·         Dr. B. N. Sawant                      (Neurologist, Mumbai)

·         Dr. Pandurang Wattamwar     (Neurologist, Solapur)

·         Dr. Nirav Mehta                      (Neurosurgeon, Mumbai)

·         Dr. Bhavesh                             (Pediatrician, Mumbai)

·         Ms. Aarti Sharma                    (Clinical Psychologist, Mumbai)

·         Dr. Ajit Harale                         (Physiotherapist, Mumbai)

·         Dr. Pallavi Kasture                  (Physiotherapist, Mumbai)

·         Dr. Arnavaz Dubash                (Occupation Therapist, Mumbai)

·         Dr. Aishwarya Swaminathan  (Occupation Therapist, Mumbai)

·         Dr. Ekta Mohite                      (Speech Therapist, Mumbai)

·         Dr. Alefiya Jariwala                (Speech Therapist, Mumbai)

Team of Epilepsy Foundation

·         Mr. Padmakar Naik                (Member)

EEG technician

·         Mr. Rahul Ambadskar 

·         Mr. Shivaji Tambe

·         Mr. Suryakant Kadam

·         Mr. J. P. Tulsankar

Team of Street Play

·         Mr. Pritesh Manjalkar

·         Mr. Datta Bhandari

·         Mr. Milind Khanvilkar

·         Mr. Amol Desai

·         Miss. Poonam Pawar

                                                                   

Free Epielpsy Detection & Treatment Camp, Jawahar, Thane on 8th April2012

Epilepsy Foundation in Association with National Rural Health Mission (NRHM) conducts regular Monthly Camp in Maharashtra for detection and treatment of epilepsy.

Our last  Camp was on 08^th April, 2012 at Civil Hospital, Jawahar (Thane).

The Following Doctors & Team of Epilepsy Foundation  were present, the camp was inaugerated by Shri Vikas Kharge , the commisioner NRHM

·        Dr. Nirmal Surya (Founder Trustee & Chairman, Epilepsy Foundation)

·        Dr. Nirav Mehta  (Secretary, Epilepsy Foundation)

·        Prof. Pravina Shah (Neurologist, Mumbai)          

·        Dr. Santosh Kondekar (Pediatrician, Mumbai)

·        Dr. Rakesh Singh (Neurologist, Mumbai)            

·        Dr. Kishore Shetty (Neurologist, Mumbai)

·        Dr.  Sameer Tyagi            

·        Dr. Nishita Singh (MBBS, Mumbai)     

·        Ms. Aarti Sharma (Clinical Psychologist, Mumbai)

·        Dr. Ajit Harale (MPT, Physiotherapist) 

·        Dr. Kasturi Shinde (Physiotherapist, Mumbai)

·        Dr. Prajakta Bhosale (Speech Therapy, Mumbai)

·        Dr. Juhi Vora (Speech Therapy, Mumbai)

EEG Technician

·        Mr. Rahul Ambadskar                  

·        Mr. Shivaji Tambe

·        Mr. Suryakant Kadam                 

·        Mr. Rajesh Nair

• Social Worker)

·        Shri. Nana Kute (Member, Epilepsy Foundation)

·        Shri. Anil K. Khandelwal     

·        Shri. Anil Gangwal            

·        Shri. Mohanlal Bhandari

·        Shri. Anand Rathi              

·        Shri. Sharad Deorah

     Anil Goel

Team of Street Play

·        Mr. Pritesh Manjalkar        

·        Mr. Milind Khanvilkar

·        Mr. Shailesh Nedge          

·        Mr. Vaibhav Gidaye

·        Mr. Mukesh Jadhav           

·        Ms. Poonam Pawar

The Feedback on the camp by Dr.Sameer



The epilepsy camp at jawhar was my first foray into any tribal area.To see the lack of basic medical and investigative procedures in the same country which boasts of cutting edge surgical and investigative techniques was an eye opener. It was sad to see that people with manageable diseases do not get access to even an MD physician; at the same time it was exhilarating to see them get access to superspeciality consultants , that is, some of the best consultants in neurology in Mumbai.I really appreciate the fact that such highly sought after consultants took time out to help people and children and traveled all the way to meet them.I think we made a dramatic impact on the life of those people especially children who without treatment would have had troubling seizures and difficulty in adjusting in society  and who now with the right treatment will have a near normal life . Those children who would have become social pariahs have the potential to do anything now.

At the same time we saw lot of children with mental retardation or global developmental delay whom we knew we were too late to cure them now; many of these people who cant take care of themselves would have been normal , functioning, smart individuals if only their mothers had received proper medical attention before, during and after their delivery.

This showed us that there is a lot to be done yet.

If all the senior consultants in Mumbai in various specialties followed the example of the doctors present that day and took just one Sunday out from their practice even once or twice a year they could change the lives of such underprivileged people.

I am thankful to you sir that you gave me the opportunity to come along and learn under the guidance of such a stellar team of doctors.

 

http://specials.msn.co.in/sp11/india365/archives_story.aspx?ID=b2d47083-9291-4969-b9b6-12f99c0661f5&index=196

Epilepsy FoundationHelping the epileptic people 10 Mar 2012 “Epilepsy is one of the most often misdiagnosed, mistreated, or under-treated conditions ever.” – James Firman.  Imagine having seizures repeatedly in life-threatening situations but unable to afford treatment for it. Imagine being pregnant and chased away from your husband’s house for having an epileptic attack. Imagine being ridiculed by peers for having a seizure on the school playground.  Epilepsy though a treatable ailment, finds itself clouded by so much stigma and myth that patients often suffer it under cover and sometimes do not even approach a doctor or a public forum to share their experiences. Also, many times patients can’t afford its treatment.  Neurologist Dr. Nirmal Surya has been striving to dispel the myths surrounding Epilepsy and to bring the victims out of the shadows for years. He has been running a free Epilepsy clinic from 1992 for poor patients who cannot afford regular treatment.  In 2009, he established the Epilepsy Foundation in Mumbai, as a non-profitable charitable organisation dedicated to giving people living with seizures, a more fulfilling life and to change the perception that society has about Epilepsy.  The Foundation also promotes research for finding a cure of Epilepsy. Epilepsy is a disease affecting 1 in 1000 children and 1 in 100,000 adults. It is more common in children because their brain is still immature. A seizure happens when there is a sudden, high frequency discharge of neurons in the brain. The reasons are difficult to diagnose. In Primary epileptic attacks, there is no reason at all, while in Secondary epileptic attacks, the cause could be a tumour, infection, trauma or vascular accidents.  The most common type is generalised tonic-clonic seizures characterised by sudden jerking of body, rolling up of eyeballs, frothing from the mouth, heavy breathing and loss of consciousness. Most often it happens during sleep and the patient has no memory of the attack. The other types are simple seizures, where there is motor or sensory paralysis but no loss of consciousness.  Epileptic patients can live a normal life and history has a shown a few great men such as Julius Caesar, Alexander the Great and Napoleon Bonaparte as having fought Epilepsy.  In an enlightening conversation with Dr. Nirmal Surya, we delved deeper into the issues surrounding Epilepsy, his organisation’s efforts to combat this ailment and the success they have achieved so far.  What motivated you to found Epilepsy Foundation?  There were so many of my patients with Epilepsy who couldn’t afford the medication to treat it; I saw parents hiding the fact that their daughters have Epilepsy fearing social stigma, getting them married and finally seeing their pregnant daughters being chased away by in-laws house for having a seizure. I wanted to help dispel the fear and stigma attached to the disease and reach out to those poor patients who suffered the disease in silence, unable to afford its treatment.  Tell us more about your organisation’s work. On a weekly basis, we hold a free clinic every Tuesday at my clinic at 1 PM where free consultation and medicines are given and all tests are done at 50 per cent of the cost. We have about 70-75 patients coming in during these sessions. We have public meetings on the last Tuesday of every month at the Bombay Hospital, where we raise awareness about Epilepsy, its treatment and possible cure.  Under the National Rural Health Mission, supported by the Government of Maharashtra we have held successful rural camps. In 2011 we held seven camps in Nashik, Satara and other districts of Maharashtra. We gave free treatment to over 2000 patients with a team of 10 doctors and some staff. These camps were very well appreciated by the Government. During these camps, we also give out educative material, books, and CDs to raise awareness.  A tele-medicine centre is run by the Government at the Epilepsy Foundation where free consultation is given to remote rural patients. Also we have a released a short movie ‘Asha – The Hope’, which helps dispel the myths surrounding Epilepsy and create awareness among patients, their caregivers and the society in general. It hopes to give patients and caregivers the strength to fight and live a normal life.  Is Epilepsy preventable? 10 per cent of Epileptic cases are preventable if two simple measures are followed. Wear a helmet always to prevent head injury during travel and avoid eating raw, leafy vegetables without cooking or properly washing. Tape worm cysts can cause Epilepsy and raw leafy vegetables contain Tape worm eggs. Also if diagnosed early, Epilepsy is completely treatable and can be cured.  What is in store for the present year? Following the success of our rural camps, we have been asked by the Government to conduct such camps in Jawahar in April 2012 and have also planned similar camps in tribal areas. A day camp has been planned in Ratnagiri on May 27.  We believe surgery can cure epilepsy, but its prohibitive costs have resulted in only 100 such operations in the entire country in a year. We are encouraging this surgery by paying for poor patients and by raising awareness about it.  We request volunteers to spread awareness about Epilepsy and adopt just one patient’s medication. Our organisation and the one soul, whose life will be saved, will forever be grateful.  Contact Details Surya Neuro Center,  310-Lotus House,  33-A, New Marine Lines,  Mumbai - 400 020  Phone: 022-2200-1180 022-2200-1181  E-mail: epilepsyfoundationindia@gmail.com  Official Website By,  Gayathri V Patil